@jettfoundation Jett Foundation

Nonprofit spreading awareness, empowering families & fulfilling unmet needs of the Duchenne muscular dystrophy community. #FightDMDTogether

@jettfoundation photos and videos

3 days ago

Today, July 8, would have been the first day of our planned JettRide. Right about now, our JettRiders would be landing in Nashville gearing up for a challenging and rewarding few weeks of cycling, raising funds and awareness for Duchenne, and meeting families in our community every pedal of the way. While this year's in-person JettRide is canceled, in the spirit of the JettRide, we are determined to keep our beloved tradition alive by offering the first ever Virtual JettRide! Beginning July 15 and ending July 31, we will be recruiting riders of all kinds to cycle remotely and help us reach our intended 850 miles. Whether it be 10 miles on your stationary bike or 100 miles on your road bike, we want you to join our team and help us reach our goal. You do not have to be a sibling or relative to join our team this year; all we ask is you hop on your bike and join us in our mission to fight Duchenne together. Join the Virtual JettRide today by filling out an interest form on our website to get started: jettfoundation.org/jettride. (Pictured: 2019 JettRiders symbolically dipping their back tires at the start of their journey; they would later dip their front tires in the ocean at the finish line. )

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2 weeks ago

Wishing you a safe and happy Independence Day! Throwback to a fun, festive 4th at @camppromise - East! 🇺🇸

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2 weeks ago

Still looking for a fun way to see your @camppromise friends? Never been to Camp Promise and want to try it out? Join us at one our upcoming sessions! We have a few spots remaining for our Camp Promise-Rockies Session (running August 3-7 ) and Camp Promise-West (August 24-28 ). You can sign up on our camp website at camppromise.org/apply. If you have questions, do not hesitate to reach out to our camp staff at campinfo @jettfoundation .org! #CampPromise #SummerCamp

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2 weeks ago

This past Sunday would have been the Cohasset Triathlon, where our Tri4Jett team has competed annually since 2013. While we really missed spending our day on Sandy Beach cheering on our Tri4Jett team, several of our teammates took up the challenge and completed their own triathlons at home while raising funds for our programs! YOU can still join our Un-Run for Duchenne and help us raise crucial funds for our programs–both in their current virtual formats, and when we are able to return to in-person activities. Visit jettfoundation.org/unrun to sign up and get started. Participants who meet their fundraising goals will be entered to win some awesome prizes like Jett swag, an Apple watch, a Nintentdo Switch, and MORE. Photo by long-time Jett supporter and athlete, Lisa Drennan #DuchenneUnRun #Tri4Jett #GoForDuchenne

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2 weeks ago

Congratulations to the Currier family in New Hampshire! They have been enjoying a new set of wheels thanks to the help of our Jett Giving Fund, our awesome donors, and their amazing support system of family and friends. Read all about their Jett Giving Fund experience on our blog: https://www.jettfoundation.org/blog.

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2 weeks ago

While this year's in-person JettRide is canceled, in the spirit of the JettRide, we are determined to keep our beloved tradition alive by offering the first ever Virtual JettRide! Beginning July 15 and ending July 31, we will be recruiting riders of all kinds to cycle remotely and help us reach our intended 850 miles. Whether it be 10 miles on your stationary bike or 100 miles on your road bike, we want you to join our team and help us reach our goal. You do not have to be a sibling or relative to join our team this year; all we ask is you hop on your bike and join us in our mission to fight Duchenne together. Join the Virtual JettRide today by filling out an interest form on our website to get started: jettfoundation.org/jettride. #Duchenne #JettRide

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4 weeks ago

Calling all moms! Join us at an upcoming virtual Porch Nite! Check out our new weekly topics for June and July and register today at jettfoundation.org/porchnite. #MomMondays #Duchenne #FightDMDTogether

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May 2020

🌸"Mothers are like glue: even when you can't see them, they are still there holding the family together."🌸 Happy Mother's Day to all the mothers and mother-figures who work so hard for their children and families in our Duchenne muscular dystrophy community. We celebrate you–your heart, your grit, your strength, your resiliency–today and every day! 💕 Photo: Ft. Lauderdale Porch Nite in February

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May 2020

Happy National Nurses Day! From the awesome nurses at @CampPromise and the nurses who share their knowledge at Family Workshops to those that care for us and our community–we thank you! #NationalNursesDay #Duchenne #musculardystrophy #raredisease #fightdmdtogether

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May 2020

Today is  #GivingTuesdayNow ! ❤️ Today, millions of people around the world are coming together in solidarity to support organizations and causes that are meaningful to them during these especially difficult times. Now more than ever, Jett Foundation needs your support. Help us to ensure that the programs our community knows and loves, both in their typical delivery and in our new virtual offerings, can continue today and long beyond. Donate today at jettfoundation.org/donate or visit our latest blog to discover other, fun ways you can support us at jettfoundation.org/blog. Thank you!  #FightDMDTogether   #StrongerThanDuchenne   #Duchenne

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Apr 2020

So much of what we do at Jett Foundation to secure funding and awareness for our programs includes bringing together our community at gatherings and athletic events that are just too risky to engage in right now. We need your help more than ever right now. That’s why we are activating Jett Foundation’s first ever, fully virtual, Go! for Duchenne fundraising event: Un-Run for Duchenne. Register today at jettfoundation.org/unrun for more details! This is an anything-goes-just-get-moving virtual event that everyone across the country can participate in while social distancing. Stroll, roll, bike, run (if you really want to ), have a video game tournament, do a craft, practice yoga in your living room, have a movie marathon, bake something from scratch… whatever it is… do it while raising funds and awareness for Duchenne. There are no fundraising minimums, but we encourage all un-runners to raise what they can to help us continue to offer incredible programming and invaluable resources to families in the Duchenne muscular dystrophy community, both now, virtually, and later, when we are able to return to our normal activities. #duchenne #dmd #duchenneunrun #raredisease #musculardystrophy #camppromise #jettgivingfund #porchnite #familyworkshops #fightdmdtogether #jettfoundation

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Apr 2020

Camp Promise is hosting a game night tomorrow from 7:00–8:00 pm ET. Join the fun and get the chance to win big! We'll be playing games via Zoom; DM us for the link. Hope to see you there! #CampPromise

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Apr 2020

Join us and unleash your creativity as Camp Promise leads us in painting kind rocks virtually. Sign up on our website and check out the many other virtual events happening throughout the month at http://www.jettfoundation.org/virtualevents.

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Apr 2020

🐾 Happy National Pet Day! 🐾 Let's spread some happiness by sharing photos at home with our pets! We know how happy they all are to have lots of extra snuggle time these days. Here are some of our staff with their cuddle bugs. Use hashtag #JettPet when you post your photos! #NationalPetDay

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Mar 2020

The Perez Family in Florida was plugging away at fundraising half the costs of an accessible van–to be matched by our Jett Giving Fund–when a serendipitous encounter on the El Show de Carlucho with Miami Cuban reggaeton artist Don Cuba brought them over the finish line! Don't miss their Jett Giving Fund story on our blog, it is a must read: jettfoundation.org/blog #JettGivingFund #FightDMDTogether #Duchenne

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Mar 2020

We had so many photos submitted over the weekend honoring our Duchenne muscular dystrophy heroes on Rare Disease Day! We are many and we are strong. Thanks for sharing your rare. #Duchenne #DuchenneMuscularDystrophy #RareDiseaseDay #FightDMDTogether

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Feb 2020

The long-term goal for the global movement, Rare Disease Day, over the next decade is increased equity for people living with a rare disease and their families. For people living with a rare disease, equity means social opportunity, equitable access to health and social care, diagnosis, and treatment. Equity in practice means meeting people’s specific needs and eliminating the barriers that prevent their full participation in society. Every person can play a part in ensuring equity for people living with a rare disease by advocating for a loved one, or even a stranger, at school, at work, in our communities, and to lawmakers. You can start raising awareness by sharing our posts featuring rare disease facts throughout the day, courtesy of our friends at Rare Disease Day. How will you take a stand? #RareDiseaseDay #FightDMDTogether #Duchenne #MuscularDystrophy #raredisease #DMD

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Feb 2020

Happy Valentine's Day! There's still time to add a heart to our wall of Duchenne Heroes! Head on over to jettfoundation.org/hearts to get started. Hope you have a fabulous day with your valentines. ♡ #valentinesday #fillaheart #Duchenne #duchenneheroes #FightDMDTogether

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Jan 2020

We are SO excited to share our @camppromise dates for the 2020 camp season! Thank you SO much to our fantastic intern, Ariana Cloutier, for helping us announce camp in such a fun way via video. Applications for volunteers and campers will be available on Monday, February 3rd on the Camp Promise website: https://www.camppromise.org/apply. Have questions? We are here to help! You can also check our website for answers to frequently asked questions about this camp season. #jettfoundation #camppromise

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Jan 2020

Looking for a way to introduce Duchenne muscular dystrophy to a child in your life? Order your free copy of "Dan and DMD" from our website today at jettfoundation.org/dan. While telling a child about a rare disease is never easy, we hope that this free children's book will help parents, guardians, and educators as they prepare to talk to their children about Duchenne. #DuchenneMuscularDystrophy #Duchenne #raredisease #FightDMDTogether

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Jan 2020

Thank you to Eagles Care for treating some of our NE families to the @bostoncollege men's ice hockey game versus @universityofvermont this weekend!

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Dec 2019

There is still time to double your impact and ability to deliver freedom to families impacted by Duchenne in need of safe, accessible transportation and medical equipment. Donate before midnight at jettfoundation.org/annualappeal and $5,000 in gifts will be matched by the Davis Family in Massachusetts. THANK YOU to all who have donated already. We can't do this without YOU! #Duchenne #DuchenneMuscularDystrophy #MuscularDystrophy #raredisease #DMD #FightDMDTogether

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Dec 2019

Today is GivingTuesday! In the midst of the holiday hustle and bustle, we ask you to take a moment and consider making a gift to Jett Foundation on this day of giving. Your contribution toward our $5,000 goal will help us continue to provide enriching programs, like Camp Promise and Jett Giving Fund, to our families impacted by Duchenne muscular dystrophy and other neuromuscular disorders. You can help by donating using the link in our bio. #FightDMDTogether #GivingTuesday #Duchenne #MuscularDystrophy

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Nov 2019

Jett Foundation Runs on Dunkin'! We are thrilled to announce our partnership with @joyinchildhood , powered by Dunkin’ & Baskin-Robbins. We are honored to be selected as one of the organization’s beneficiaries and awarded a generous gift of $20,000 in support of our joy-driven programs for children. To top off this incredible gift, the Joy in Childhood Foundation® surprised our team with a Dunkin' breakfast to celebrate! Thank you to the foundation and the generosity of Dunkin' and Baskin-Robbins franchisees, corporate partners, employees and guests. Read more on our blog: jettfoundation.org/blog. #JICFGrantee #FightDMDTogether #Duchenne #DuchenneMuscularDystrophy #MuscularDystrophy

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